EIGHT GREATS….FOR GBS CIDP AWARENESS MONTH THIS MAY!
EIGHT GREATS….FOR GBS CIDP AWARENESS MONTH THIS MAY! There are plenty of ways to raise awareness! The most important thing to remember is that most successful awareness raising activities begin…
February, Multifocal Motor Neuropathy (MMN) Awareness Month
Ways to Get Involved in Awareness Month! If you have MMN, or know someone who does, you are not alone. MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas…
2023 International Regional Meetings
2023 Barcelona, Vienna, and Copenhagen Regional Meetings Join us this March for an EU Regional Meeting Near you! Have you, or a loved one, recently been diagnosed with Guillain-Barre Syndrome…
GBS | CIDP Spain holds Virtual Conference on Rare Disease Day
By Volunteer Alex Real of Madrid GBS | CIDP Spain held their first Virtual Conference on Feb. 28, 2022, Rare Disease Day on Dysimmune Inflammatory Neuropathies(DIN) in collaboration with Neuromuscular…
A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Read more about A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).
February, Multifocal Motor Neuropathy(MMN) Awareness Month
February is Multifocal Motor Neuropathy(MMN) Awareness Month MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system….
International Activities Coordinator
Activities & Tasks, International Activities Coordinator Assist with international patient inquiries that come into the Foundation, through web and phone call. Work with VP International Relations to recruit and train…
Acute and Chronic Inflammatory Neuropathies and Covid-19 Vaccines
Practical recommendations form the task force of the Italian Peripheral Nervous System Association (ASNP) The following is a brief summary of the above-mentioned article, contributed by GBS|CIDP Foundation International GMAB…
Foundation Board approves funding for largest multi-country CIDP research ever
Chronic inflammatory demyelinating polyneuropathy (CIDP) is such a remarkably heterogeneous disorder – one with diverse presentations, a highly variable disease course, and differing, often unpredictable treatment responses. Neurologist-researchers around the…
An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH
(Please see the following open letter statement authored by members of the GBS|CIDP Foundation International medical community as referenced.) As clinician/scientists who have spent careers studying GBS, we are concerned…