Providing Strength Through Support


Supported by the GBS|CIDP Foundation International

News

EXECUTIVE DIRECTOR, LISA BUTLER DISCUSSES LEGISLATION, FOR PATIENTS ON MEDICARE, WITH NHC

February 22, 2024

Executive Director, Lisa Butler discusses legislation, for patients on Medicare, with NHC. Full article here:https://nationalhealthcouncil.org/blog/guest-post-legislation-needed-to-improve-access-to-vital-treatment-for-medicare-rare-disease-patients/

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Sait, GBS Patient

Patient Story

Sait Mentes Birlik

In April 2013, my life took an unexpected turn when I was struck by a rare disorder known as Guillain-Barre Syndrome (GBS). Until then, I had never heard of this…

Learn More about Sait Mentes Birlik

News

WHY RARE CONDITIONS DESERVE ATTENTION AND RECOGNITION AS A GLOBAL HEALTH CONCERN

February 22, 2024

As Rare Disease Day is approaching, CSL Behring is in touch with leaders of patient advocacy groups to explain why rare conditions deserve attention and recognition as a global health…

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September 11-13, 2025

18th BIENNIAL PATIENT SYMPOSIUM: Denver, Colorado!


Registration will open at the beginning of 2024