Connecting with Rare Disease organizations across Europe
Nancy Di Salvo, the International Affairs Director, shares her personal patient story with the LIFE Association (https://www.zivotorg.org/) in Word for Life, the first specialized magazine dedicated to rare diseases in the Balkans.
Founded in 2010, the LIFE Association has been a leading force in raising awareness about rare diseases, providing essential therapies and medical equipment, and advocating for better social inclusion of patients and their families. Among its many achievements, LIFE Association launched the first and only magazine in the Balkans focused on rare diseases, Word for Life, which has been published since 2015 (https://retkebolesti.com/sr/casopis). This magazine earned the prestigious European Organization for Rare Diseases Black Pearl Award in 2018.