Patient Stories

Sharing Stories Can Help the Healing

If you would like to be included, please email We would love to hear from you & share your journey!

La storia di Nancy Di Salvo


Vi presentiamo Nancy Di Salvo, membro della Fondazione, instancabile volontaria internazionale per la comunità GBS | CIDP. Scoprite perché ritiene che “ogni piccolo risultato sia una grande vittoria”. Ci siamo seduti…

Alejandra’s Story


My name is Alejandra and I have CIDP. It all started in 2006 with a bad flu. I was working 16 hours days and was having problems with my legs….

Juan Antonio’s Story


In 1998, my sister and I were both diagnosed with GBS. After a misdiagnosis and three hospitals visits, it was finally determined we had Guillain-Barre Syndrome. At the time, no…

Adrienn’s Story

My illness all started with muscle stiffness and numbness in my legs. By the time, I received a lumbar puncture; I was already in critical condition and placed on a…

James Babington Smith


It all started when I thought I was diagnosed with Guillain-Barre Syndrome many years ago. After making a reasonable recovery, I continued on to live my life to the fullest…

Filip’s Story

I am Filip and I have CIDP. The first real symptoms I had of CIDP were when I had difficulty standing up straight without any support. This rose a concern…