Patient Stories

Sharing Stories Can Help the Healing

If you would like to be included, please email We would love to hear from you & share your journey!

Patrick’s Story

Multifocal motor neuropathy (MMN) changed Patrick’s life, but also that of his partner Marie-Pier. Learn how they overcame this ordeal by hearing their story of hope, perseverance and love during…

La storia di Nancy Di Salvo


Vi presentiamo Nancy Di Salvo, membro della Fondazione, instancabile volontaria internazionale per la comunità GBS | CIDP. Scoprite perché ritiene che “ogni piccolo risultato sia una grande vittoria”. Ci siamo seduti…

Alejandra’s Story


My name is Alejandra and I have CIDP. It all started in 2006 with a bad flu. I was working 16 hours days and was having problems with my legs….

Juan Antonio’s Story


In 1998, my sister and I were both diagnosed with GBS. After a misdiagnosis and three hospitals visits, it was finally determined we had Guillain-Barre Syndrome. At the time, no…

Adrienn’s Story

My illness all started with muscle stiffness and numbness in my legs. By the time, I received a lumbar puncture; I was already in critical condition and placed on a…

James Babington Smith


It all started when I thought I was diagnosed with Guillain-Barre Syndrome many years ago. After making a reasonable recovery, I continued on to live my life to the fullest…

Filip’s Story

I am Filip and I have CIDP. The first real symptoms I had of CIDP were when I had difficulty standing up straight without any support. This rose a concern…