GBS | CIDP Spain holds Virtual Conference on Rare Disease Day

By Volunteer Alex Real of Madrid GBS | CIDP Spain held their first Virtual Conference on Feb. 28, 2022, Rare Disease Day on Dysimmune Inflammatory Neuropathies(DIN) in collaboration with Neuromuscular…

Read More about GBS | CIDP Spain holds Virtual Conference on Rare Disease Day

Foundation Board approves funding for largest multi-country CIDP research ever

Chronic inflammatory demyelinating polyneuropathy (CIDP) is such a remarkably heterogeneous disorder – one with diverse presentations, a highly variable disease course, and differing, often unpredictable treatment responses. Neurologist-researchers around the…

Read More about Foundation Board approves funding for largest multi-country CIDP research ever

A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

Read more about  A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).

Read More about A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

February, Multifocal Motor Neuropathy(MMN) Awareness Month

February is Multifocal Motor Neuropathy(MMN) Awareness Month MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system….

Read More about February, Multifocal Motor Neuropathy(MMN) Awareness Month

International Activities Coordinator

Activities & Tasks, International Activities Coordinator Assist with international patient inquiries that come into the Foundation, through web and phone call. Work with VP International Relations to recruit and train…

Read More about International Activities Coordinator

Acute and Chronic Inflammatory Neuropathies and Covid-19 Vaccines

Practical recommendations form the task force of the Italian Peripheral Nervous System Association (ASNP) The following is a brief summary of the above-mentioned article, contributed by GBS|CIDP Foundation International GMAB…

Read More about Acute and Chronic Inflammatory Neuropathies and Covid-19 Vaccines

Dr. A.S. Fauci Corrects Previous Statement Regarding COVID-19 Vaccines and GBS

As a follow up to the Foundation’s published article from Dec. 20, 2020, “An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH,” on January 15, 2021, Neurology Today published…

Read More about Dr. A.S. Fauci Corrects Previous Statement Regarding COVID-19 Vaccines and GBS

Persons who have previously had GBS may receive an mRNA COVID-19 vaccine

Please see the full article at https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.html

Read More about Persons who have previously had GBS may receive an mRNA COVID-19 vaccine

An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH

(Please see the following open letter statement authored by members of the GBS|CIDP Foundation International medical community as referenced.) As clinician/scientists who have spent careers studying GBS, we are concerned…

Read More about An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH

Running to Raise Awareness and Fundraising for GBS CIDP Foundation International

On November 14th, João Mateus, a 33-year-old Portuguese fund manager and marathon runner, paid tribute to his grandmother, Maria Manuela Mateus – loved and cherished by all. Manuela Mateus was…

Read More about Running to Raise Awareness and Fundraising for GBS CIDP Foundation International