European Parliament adopts substances of human origin (SoHO) On 12 September 2023, the European Parliament adopted the report on new rules governing the use of so-called substances of human origin…
Statement regarding GBS alert in Peru July 10, 2023 July 10, 2023 The Foundation and its Global Medical Advisory Board are aware that Peru has issued a statement of emergency…
2023 Virtual Summit, Life After Diagnosis Back by popular demand, our 2023 Virtual Summit will feature a wide range of educational panels and presentations, as recorded at the 2022 Ponte Vedras, FL Patient Symposium &…
EIGHT GREATS….FOR GBS CIDP AWARENESS MONTH THIS MAY! There are plenty of ways to raise awareness! The most important thing to remember is that most successful awareness raising activities begin…
Ways to Get Involved in Awareness Month! If you have MMN, or know someone who does, you are not alone. MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas…
2023 Barcelona, Vienna, and Copenhagen Regional Meetings Join us this March for an EU Regional Meeting Near you! Have you, or a loved one, recently been diagnosed with Guillain-Barre Syndrome…
By Volunteer Alex Real of Madrid GBS | CIDP Spain held their first Virtual Conference on Feb. 28, 2022, Rare Disease Day on Dysimmune Inflammatory Neuropathies(DIN) in collaboration with Neuromuscular…
Read more about A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).
February is Multifocal Motor Neuropathy(MMN) Awareness Month MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system….
Activities & Tasks, International Activities Coordinator Assist with international patient inquiries that come into the Foundation, through web and phone call. Work with VP International Relations to recruit and train…
