Foundation News

International Rare Disease Day 2024

Director of International Affairs, Nancy Di Salvo participated in a GBS|CIDP, MMN awareness meeting held at the local Franciscan Fraternity – Ordine Francescano Secolare – OFS – Bagheria (Italy) over the weekend as Rare Disease Awareness month ended. Thanks for the participation and information on plasma donation by the Italian Blood Donors Association – AVIS. #Rarediseaseday #plasmadonations #plasmasaveslives

We also attended attended a Rare Disease Day Event at the University of Palermo along with local authorities, physicians, patient organizations and patients. The GBS|CIDP Foundation was a part of the Round Table discussing policies and procedures regarding the local patient community.

Sicilian Rare Disease Network, with local authorities, physicians and clinical experts.

https://www.unipa.it/dipartimenti/promise/centri-per-le-malattie-rare/Associazioni-e-collaborazioni/