February, Multifocal Motor Neuropathy(MMN) Awareness Month
February is Multifocal Motor Neuropathy(MMN) Awareness Month MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system….
International Activities Coordinator
Activities & Tasks, International Activities Coordinator Assist with international patient inquiries that come into the Foundation, through web and phone call. Work with VP International Relations to recruit and train…
Acute and Chronic Inflammatory Neuropathies and Covid-19 Vaccines
Practical recommendations form the task force of the Italian Peripheral Nervous System Association (ASNP) The following is a brief summary of the above-mentioned article, contributed by GBS|CIDP Foundation International GMAB…
Foundation Board approves funding for largest multi-country CIDP research ever
Chronic inflammatory demyelinating polyneuropathy (CIDP) is such a remarkably heterogeneous disorder – one with diverse presentations, a highly variable disease course, and differing, often unpredictable treatment responses. Neurologist-researchers around the…
Persons who have previously had GBS may receive an mRNA COVID-19 vaccine
Please see the full article at https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.html
An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH
(Please see the following open letter statement authored by members of the GBS|CIDP Foundation International medical community as referenced.) As clinician/scientists who have spent careers studying GBS, we are concerned…
Running to Raise Awareness and Fundraising for GBS CIDP Foundation International
On November 14th, João Mateus, a 33-year-old Portuguese fund manager and marathon runner, paid tribute to his grandmother, Maria Manuela Mateus – loved and cherished by all. Manuela Mateus was…
Dr. Bart Jacobs, Vice Chairman of GMAB, and co-authors, “Editor’s Choice,” Brain Journal
Regional variation of Guillain-Barré syndrome Brain, Volume 141, Issue 10, 1 October 2018, Pages 2866–2877 An article published in Brain Journal, September 25, 2018, regarding research findings of the International…