GBS-CIDP Foundation International joins the TRANSFORM Alliance
Expanding Our European Presence The past year has been an exciting time of collaboration and growth for our work in Europe. In March, we proudly joined the European Alliance for…
Regional Patient Conference in Melbourne, Australia
We’re headed back to Australia! The GBS|CIDP Foundation International is excited to announce that we are headed back to Australia for a Regional Conference in Melbourne! Our last regional gathering…
The GBS-CIDP Foundation joins the Critical Medicines Alliance
The GBS-CIDP Foundation recently joined the Critical Medicines Alliance, an initiative launched by the European Commission for the next 5 years. The objective of the Alliance is “to serve as a…
Connecting with Rare Disease organizations across Europe
Nancy Di Salvo, the International Affairs Director, shares her personal patient story with the LIFE Association (https://www.zivotorg.org/) in Word for Life, the first specialized magazine dedicated to rare diseases in…
Educational Workshop for CIDP Patients – “CIDP Closer to the Patient” | Rzecznicy Foundation
GBS|CIDP Foundation Hosts a Virtual Summit
Back by popular demand, our 2024 Virtual Summit, on Friday, September 27th and Saturday, September 28th, will feature a wide range of educational panels and presentations, as recorded at the…
Clinical and care complexity, in Palermo around the round table of clinicians and patient associations.
GMAB Statement regarding recent GBS outbreak in Tlazcala Mexico
GBS is a rare immune disorder that damages peripheral nerves (that is, nerves outside of the brain and spinal cord). In most people GBS is triggered by exposure to an infectious illness,…
Global connections that go beyond GBS
As our International activities proceed, reaching out to our volunteers all over the world to understand their local activities, critical aspects and goals for the future, we were recently contacted…
The Testimony of Rosa Valera with her “Rare” disease – Rare Diseases Day 2024
Our International Liaison from the Dominican Republic, Rosa Valero, participates in a local Radio Talk show to raise awareness on Rare Disease Day.